Paediatric Palliative Care Programme
The AKUH Paediatric Palliative Care Programme offers specialised care and comfort to improve the quality of life for children with serious or life-limiting illnesses, and their families. We focus on managing pain and other symptoms, while providing emotional support throughout a child's illness and helping families navigate difficult decisions.
Conditions We Can Help With
Our programme cares for children with a wide range of complex medical conditions, including:
- Chronic illnesses like heart disease, cystic fibrosis, and muscular dystrophy
- Cancers
- Neurological disorders
- Genetic disorders
- Congenital anomalies
- Other life-limiting illnesses
Our Services
We offer a comprehensive range of services to manage your child's condition, including:
- Pain and symptom management: We work to control pain and other physical symptoms that can cause discomfort.
- Psychological support: We provide emotional support for children and their families, including counseling and sibling support.
- Advanced care planning: We help families in making informed decisions for their child's future care.
- Home-based care: We provide support to patients and families at their preferred location, such as their home, in coordination with home health care services.
- Bereavement support: We offer support to families who have lost a child.
Our Multidisciplinary Team
Our programme brings together a team for your child's complete care:
- Paediatric palliative care physician: A doctor specially trained in caring for children with serious illnesses. They also help families access resources and navigate social challenges.
- Clinical psychologists: They provide emotional and developmental support for children and families.
- Volunteers ('Paediatrics for Life' students' group): They provide support in birthday celebrations for children, make-a-wish events, making mementos for families, and more.
To learn more about our highly trained and skilled experts, search on Find a Doctor under the speciality of Palliative Care.
Together, we work collaboratively to address the physical, emotional, and social needs of children and families, fostering a supportive and nurturing environment throughout their journey.
